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Adults with Down Syndrome: Clinical Perspectives |
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Adults with Down Syndrome:
Specialty Clinic Perspectives
By Brian Chicoine, MD, Dennis McGuire, PhD
and Stephen Rubin, PhD
Originally published in Dementia, Aging and Intellectual Disabilities: A Handbook ed. by Janicki and Dalton (Taylor and Francis, 1999)
In response to a request by the local parent group, a clinic was developed to provide for the medical and psychosocial needs of adults with Down syndrome. One of the concerns of the parents was that their sons and daughters were not receiving an adequate evaluation when they had a decline in function and were being given a diagnosis of Alzheimer's disease based on a presumption that all persons with Down syndrome develop Alzheimer's disease. The thorough evaluation that each patient receives is described. The majority of the adults seen show no decline in function. Of those that showed a decline in function, a small percentage were diagnosed with Alzheimer's disease, but most of those with a decline had a potentially reversible problem and, with treatment, most returned to their premorbid level of function. |
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Health Care Guidelines For Adults |
Based on 1999 Down Syndrome Health Care Guidelines*
Health Guidelines for Adults with Down Syndrome
Adulthood (More than 18 Years)
- TSH and T4-Thyroid Function Test (annual).
- Auditory testing (every 2 years).
- Cervical spine x-rays (as needed for sports); check for atlanto-axial dislocation.
- Opthalmologic exam, looking especially for keratoconus & cataracts (every 2 yrs)
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Adult Letter of Introduction |
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Thank you for requesting information on Down syndrome. We are fortunate to have the Down Syndrome Aim High Resource Center right here in the Capital District area to provide information and support to parents, professionals and individuals who seek information on issues about Down syndrome. The Down Syndrome Aim High Resource Center (DSAHRC) is a nonprofit organization with a Board of Directors, a professional staff, and families and professionals committed to increasing opportunities for individuals with Down syndrome. The purpose of DSAHRC is to enlighten and encourage the broader community to recognize the individuality, uniqueness, and capabilities of individuals with Down syndrome, and to reflect the hopes and dreams of those individuals and their families. |
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Health Care Guidelines For Adolescents |
Based on 1999 Down Syndrome Health Care Guidelines*
Health Guidelines for Adolescents with Down Syndrome
Adolescence (12-18 Years)
- TSH and T4-Thyroid Function Test (annual).
- Auditory Testing (annually).
- Monitor for obstructive airway; sleep apnea.
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